Bethany Barrow-Clarke
Amount Raised
Fundraising Goal $1,120.00

My Message

Back in September 2019 I started to feel unwell and having pain in my side and hip. The pain was fairly bad so it didn't take me long to go to see my doctor who sent me for my first scan. This didn't show much and was followed up with another scan a month later. Still nothing but the pain was getting worse and for longer periods of time. It wasn't much longer until I was having pain killers every day to keep on top of the pain. Along with the pain I had started having really itchy patches of skin and was waking up in the middle of the night freezing cold or with shakes and night sweats. I had an intense 5 months of scans, tests and trips to emergency. Each time leaving with no answer, another follow up, a new specialist to see or more medication. No one new what the pain was, the doctors put my fever down to an infection they couldn't find and the itchy skin was treated with different creams that never helped. By Feb 2020 I was beside myself. I was on painkillers all day every day, my skin was so itchy and uncomfortable, I had scratches and cuts all over my skin from itching so much. Each time I went to emergency I would have taken painkillers so my fever would be reduced and the pain would be subsiding. The doctors would say I'm not sick enough to admit and send me home with stronger meds. I knew I was never going to be looked at by a doctor at the hospital unless I was really sick. 10th Feb 2020 I decided to stop taking all medication and waited until the afternoon so I was really unwell. My fever was quickly going up, my blood pressure was extremely low and I was in so much pain. It took about 10 minutes for the nurse to rush me through emergency and hook me up to drips and meds. My 2nd night in hospital my fever went up to 39.4 and up until then, I had never felt so unwell. I was quickly surrounded by the nurses and doctors to take bloods and work to get my temperature down, which eventually it did. The next 10 days I was seen by countless doctors, spent 4 days in an isolation room where a nurse came and took 18 tubes of blood to test me for 22 different diseases such as TB and Lupus. All came back showing nothing, but I was allowed out of isolation. This was probably the hardest and most loneliest time in my life. I was so worried they would send me home and I would still have no answers, but one doctor reassured me that I wouldn't be leaving hospital until they found out what was wrong. Although this meant I didn't know how long I would be in hospital, I was relieved that I wasn't going to leave without an answer. On day 7 they took me for yet another CT scan. This time on my upper body, instead of my lower body where all my other scans had been focused due to where the pain was. This showed swollen lymph nodes around my neck where I then had 6 little biopsy's. They mentioned they were testing for Cancer and Lymphoma but never in my life did I think that would be the outcome. Day 9 a new doctor came to see me. He was a Hematologist and said it was early signs of Lymphoma but they needed another 24 hours to be sure. Day 10, 20th Feb 2021 with Blake, my partner, and my Dad by my side, the doctor came back to confirm I had Hodgkin's Lymphoma. I had looked up my symptoms on line before and although it had mentioned cancer, I didn't want to be a hypochondriac thinking the worst. When I searched up Hodgkin's Lymphoma, I had already every symptom and wondered why my diagnosis took so long. The next few weeks were filled with more tests, fertility treatment and egg freezing, decisions as to what treatment I had and information sessions. When I left the hospital the doctors thought I was stage 2, but once I have my first PET scan, it showed I was stage 4 with cancer in my hips, most of the way up my spin and all around the top half of my body. I was hard to hear but I was so lucky to have a huge support system around me, including my best friend Jen who flew all the way from England to Aus to be with me. 19th March Blake and I went for my first chemo session. The first of 12 I was about to have every other week. I prepared my bag, took books and puzzles, snacks, all the things I had been told or researched what to take. I was terrified but knew Blake would be there. But thanks to covid, the hospital rules changed that morning and friends and family weren't allowed to the treatment rooms. I cried.... a lot! I had to do every chemo session by myself but the nurses were amazing! We got into the rhythm of chemo, every other Thursday. I knew which drugs hurt being administered. Which ones made me feel nauseous and when I'd feel sick. But after session 8 or 9 I was over it. I cried more than I smiled. I just wanted it to be over. The last few weeks went by so slowly. Chemo can be so so hard, physically and mentally. I don't think I will ever be able to describe how unwell I felt when I was having my treatment. Finally 20th August 2020 I had my last chemo and with my last PET scan done, I was confirmed I was in remission! I have just celebrated my first 12 months in remission and hope that is the way it stays. As I was stage 4 I am in the group most likely to relapse but I hope every day that I don't. On the evening of Saturday 16 October, I am taking part in Light the Night because blood cancer has touched my life. Although this is supposed to be a night celebrated with friends and family, I think covid has other ideas. To raise money I will be walking 12,000 steps a day for 12 days. 1 day for each chemotherapy session I had. Although this won't sound like much to some, to someone who couldn't walk 1000 steps due to chemo side effects, I am proud of my self to be able to do this. I also have 2 amazing people who will be completing a 5km run with me to help raise these much needed funds. Blake, my wonderful partner and Mel, one of my amazing friends who has supported me through this whole journey! Funds raised through this special event provide families facing blood cancer with the care needed to make it through every scary, uncertain moment that follows a diagnosis. Donations also transform fear into hope in miraculous, life-changing ways by furthering the work of brilliant research scientists. This research is saving lives right now as it continues to discover faster diagnoses and even better treatments for people with blood cancer. Please help me reach my goal of $560 as this will pay for a family to travel and stay away from home for a week, should they need to travel for this life saving treatment. I was so lucky my hospital was only 10 mins away from my home. I can't imagen what it would be like to have to make a 200km round trip every 2 weeks. Not only the stress of treatment but the financial cost would be hugely stressful. I understand that not everyone is in a position to donate money. I ask that if not, you take 5 minutes to research blood cancer or even look up the symptoms. Had I known the symptoms it may not have taken me 5 months to receive my diagnosis. One day you might be able to save someone's life. Thank you so much for my reading my story, it means so much to me and I will forever be grateful, Beth xx
Event Date
Oct 16, 2021 5:00 PM
Location Name
At Home

My Group

Bethany is part of Bethany's Light the Night
View Group Page
%TeamName% is affiliated with %CorporateTeamName%

My Supporters (42)

Family left a message
Sep 17, 2021 5:48 AM
Here for Support
Abe Cannedy left a message
Sep 17, 2021 5:35 AM
Thank you Bethany for what you are doing! It is an inspiration for many.
Abe Cannedy donated $300.00
Sep 17, 2021 5:28 AM
Allen Cannedy donated $100.00
Sep 16, 2021 3:53 AM
Corey Nelson donated $200.00
Sep 15, 2021 7:15 AM
Ally left a message
Sep 14, 2021 6:45 PM
Sending all our love and support. Xo
Alicia & Aydin Molokov donated $53.00
Sep 14, 2021 6:45 PM
Craig, Kirsty & Isla xxx donated $53.00
Sep 14, 2021 10:19 AM
Virginia Gough left a message
Sep 11, 2021 9:29 PM
Thankyou for sharing your story Bathany xo
Virginia Gough donated $30.00
Sep 11, 2021 9:25 PM
Dot m-w left a message
Sep 11, 2021 6:17 PM
Well done, we are so proud of you. Love nanny and Allen
Dot Mornington-West donated $177.87
Sep 11, 2021 5:03 PM
Nanny B left a message
Sep 11, 2021 5:00 PM
Lots of love, Nanny B and Grandad
Gerry Barrow donated $53.00
Sep 11, 2021 4:59 PM
Alyssa N donated an undisclosed amount
Sep 11, 2021 8:11 AM
Karen left a message
Sep 10, 2021 4:39 AM
Good luck with the fundraising
Karen Joseph donated $30.00
Sep 10, 2021 4:38 AM
Susie Owers donated an undisclosed amount
Sep 9, 2021 4:31 AM
Hamish Bignell donated $20.00
Sep 8, 2021 11:11 PM
Caitlin left a message
Sep 8, 2021 8:35 PM
You are amazing! Good luck with the walk Xx
Caitlin Davidson donated $40.00
Sep 8, 2021 8:34 PM
Wickie left a message
Sep 8, 2021 6:32 PM
Well done Beth. What a strong woman you are. xx
Christine and Paul Nicholson donated $150.00
Sep 8, 2021 6:30 PM
Dianne Hotschilt donated $30.00
Sep 8, 2021 1:40 PM
Jessica Georgeski donated $80.00
Sep 8, 2021 6:56 AM
Fleur Johnson donated $53.00
Sep 7, 2021 10:01 PM
Chris and Colin Weaver donated $40.00
Sep 7, 2021 4:45 PM
Poppy Horrigan donated $20.00
Sep 7, 2021 3:58 PM
Privacy Requested donated an undisclosed amount
Sep 7, 2021 1:35 PM
Tayla Price donated $25.00
Sep 7, 2021 8:51 AM
Beauty with Lulu donated $100.00
Sep 7, 2021 8:34 AM
Ingrid Shepherd left a message
Sep 7, 2021 7:30 AM
You are amazing Beth! We are so lucky to have you in our lives! x
Ingrid Shepherd donated $100.00
Sep 7, 2021 7:28 AM
Holly Keenan donated $55.82
Sep 7, 2021 4:46 AM
The Alcocks left a message
Sep 6, 2021 11:34 PM
Good luck Beth! You are inspirational! :heart:
Edith Alcock donated $80.00
Sep 6, 2021 11:31 PM
Krissy and Scotty Nicholson Barrow donated $100.00
Sep 6, 2021 10:35 PM
Layne left a message
Sep 6, 2021 10:18 PM
Love you! You are amazing :heart:
Layne Shepherd donated $80.00
Sep 6, 2021 10:16 PM
Jen and Dan left a message
Sep 6, 2021 10:09 PM
The most bravest person I know, so proud of you, xxxx
Jen Bahnam donated $80.00
Sep 6, 2021 10:08 PM
Ashlea - Leukaemia Foundation left a message
Sep 1, 2021 4:03 PM
Hi Bethany, Thank you for registering for our Light the Night campaign to shine a white lantern in support of your own blood cancer journey. Thank you also for sharing your journey of your blood cancer diagnosis. It is so special that you can join our beautiful lantern ceremony on Saturday 16th October with the support of a community that understands the darkness a blood cancer brings to our lives. Good luck with your fundraising and please do not hesitate to reach out to me directly on 02 9902 2224 for any questions, I am always here for support ??