My Message
Leukaemia is traumatic, scary, something that will haunt me forever! This is only a small portion of my story. The reason being I hardly remember what happened after my relapse, you’ll understand why when you continue reading.
I had two life-threatening experiences with cancer, one journey started in November 2017 and the second started in April 2019. Many rounds of chemo and two transplants were extremely hard and the effects of cancer last forever. Both transplants I received were two very different experiences for me. My first transplant was from my little brother hugh, a sibling donor.
On March 6th 2018 I was admitted to commence intensive chemotherapy to kill off all the cells in my marrow before getting the new stem cells from my brother. I was in an isolation room for 23 days, then I needed to stay near the hospital for a further month. My body was building up the new cells, with the hope that no leukaemia cancer cells wouldn’t return. After 4 months I felt strong enough to return to normal living and be a healthy teenager.
Around my 16th birthday, 13 months post my first transplant, I relapsed.
The second transplant I received was from an anonymous donor, it was cord stem blood which comes from the umbilical cord of a new born baby.
It was definitely traumatic to get through and not as easy as the first one. From full body radiation, to lesions on the brain, mucositis and a serious cases of gvhd (rashes, swelling, stomach issues etc) which resulted in need on many steroids which then had many other severe side effects. As a result of all the side effects I ended my second transplant very underweight.
I spent 100 days in isolation during that second transplant.
The effects last forever, because of the many rounds of toxic chemo, full body radiation and having had steroids, the never ending side effects like others who experienced what I have all live our lives still struggling with something. For me I struggle with remembering things due to the lesions on my brain. At time many things became a complete and utter blur. Even today I can’t manage a full day without fatiguing. I it extremely scary that I can be living a moment of my life and not remember what happened.
The effects of cancer last forever, there are haunting memories, fear and struggles that linger and pop up from time to time. Myself and other kids in remission face struggles with schooling, getting back into proper life and engaging with friends because we have been isolated and living in a little bubble.
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Ruby is part of D’Rozario Family
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